International Patient Decision Aids Standards (IPDAS) Collaboration

Who's Involved?

Those involved in ongoing work for the IPDAS Collaboration are listed below.

For more details see the Terms of Reference.

Steering Committee
Dawn Stacey PhD (co-lead)	University of Ottawa	CA
Robert J Volk PhD (co-lead)	University of Texas MD Anderson Cancer Center	US
Michael J Barry MD	Harvard Medical School	US
Hilary Bekker PhD	Leeds University	UK
Nananda Col MD	University of New England	US
Martin Härter MD PhD Dipl Psych	University Medical Center Hamburg-Eppendorf	DE
Tammy Hoffman PhD	Bond University	AU
Kirsten McCaffery PhD	University of Sydney	AU
Michael Pignone MD MPH	Duke University	US
Karina Dahl Steffensen MD PhD	University of Southern Denmark	DK
Karen Sepucha PhD	Harvard Medical School	US
Lyndal Trevena PhD	University of Sydney	AU
Trudy van der Weijden PhD	University of Maastricht	NL
Holly Witteman PhD	Laval University	CA
Rachel Thompson PhD	University of Sydney	AU

People involved in the IPDAS 2.0 update (2018 to present).

Introduction
Co-Leads	Robert J Volk, and Dawn Stacey with the IPDAS Steering Committee
Chapter A	Using a Systematic Development Process
Co-Leads	Robert J Volk, and Holly Witteman
Team Members	Jeanette Finderup (DK), Krystina Lewis (CA), Kristin Maki (US), Karina Dahl Steffensen (DK), Gratianne Vaisson (CA)
Chapter B	Providing Balanced Information About Options
Co-Leads	Karina Dahl Steffensen, Richard W Martin, and Stina L.B. Andersen
Team Members	Tammy Hoffmann (AU), Mary Ann O'Brien (CA), Paulina Bravo (CL), Karina Olling (DK), Heather Shepherd (AU), Dawn Stacey (CA), Kathrina Dankl (DK)
Chapter C	Presenting Probabilities
Co-Leads	Lyndal Trevena, and Brian J Zikmund‑Fisher
Team Members	Paul Han (US), Carissa Bonner (AU), Adrian Edwards (UK), Wolfgang Gaissmaier (DE), Yasmina Okan (UK), Elissa Ozanne (US), Ellen Peters (US), Danielle Timmermans (US)
Chapter D	Clarifying and Expressing Values
Lead	Holly Witteman
Team Members	Jesse Jansen (AU), Michael Pignone (US), Angie Fagerlin (US), Teresa Gavaruzzi (IT), Bob Arnold (US), John F P Bridges (US), Selma Chipenda Dansokho (CA), Ruth Ndjaboue (CA), Arwen Pieterse (NL), Dean Regier (CA), Praveen Thokala (UK), Marieke Weemink (NL), Douglas White (US), Celia Wills (US),
Chapter E	Using Personal Stories
Co-Leads	Hilary L Bekker, and Victoria Shaffer
Team Members	Suzanne Brodney (US), Elizabeth Thomas (US), Yaara Zisman-Ilani (US), Bob Volk (US), Sarah Munroe (CA), Katherine Valentine (US), Teresa Gavaruzzi (IT), Sian Smith (AU)
Chapter F	Guiding / Coaching in Deliberation and Communication
Co-Leads	Dawn Stacey, Sascha Koepke, Janet Jull, and Anne Rahn
Team Members	Marie-Chantal Loiselle (CA), Jeanette Finderup (DK), Laura Boland (CA), Maureen Smith (Consumer CA)
Chapter G	Disclosing Conflicts of Interest
Co-Leads	Rachel Thompson, and Clarence Braddock
Team Members	Michael J Barry (US), Evelyn Chan, Ben Moulton, Barry Main (UK), Zoe Paskins (UK), Martin Härter (DE), Thaddeus Pope (US)
Chapter H	Addressing Health Literacy
Co-Leads	Kirsten McCaffery, Marie-Anne Durand, and Danielle Muscat
Team Members	Sian Smith (UK), Nora Moumjid (FR), Tamara Cadet (US), Anik Giguere (CA), Aisha Langford (US), Lilisbeth Perestelo-Perez (ES), Jenna Smith (AU), Ashley Housten (US), Julien Mancini (FR), Renata Yen (US), Glyn Elwyn (US), Myrtle Mitchell (US), Sherrill Jackson (US)
Chapter I	Basing Information on Comprehensive, Critically Appraised, and Up-To-Date Syntheses of the Scientific Evidence
Co-Leads	Tammy Hoffman, and Juan Pablo Brito
Team Members	Lilisbeth Perestelo Pérez (ES), Catherine Saunders (US), Mina Bahkit (AU), Marie-Anne Durand (FR)
Chapter J	Establishing the Effectiveness
Co-Leads	Karen Sepucha, and Richard Thomson
Team Members	Celia Wills (US), Mary Ropka (US), Daniel Matlock (US), Logan Trenaman (CA), Jesse Jansen (AU), Christine Stirling (AU), Mirjam Körner (Germany), Jennifer Blumenthal-Barby (US), Joanne Lally (UK), Lilisbeth Perestelo Perez (ES), Kathrene Valentine (US), Ha Vo (US)
Chapter K	Implementation
Co-Leads	Natalie Joseph-Williams, and Trudy van der Weijden
Team Members	Christine Stirling (AU), France Legare (CA), Paulina Bravo (CL), Aisha Langford (US), Mirjam Körner (DE), Angerla Coulter (UK), Laura Boland (CA), Sarah Munroe (CA), Anik Giguere (CA), Aubri Hoffman (US), Purva Abhyankar (UK), Richard Martin (US), Daniel Matock (US), Nora Moumjid (FR), Suzanne Brodney (US), Karina Dahl Steffensen (DK), Alison Brenner (US)

People involved in the 2012 update of the IPDAS Collaboration Background Document.

Introduction
Lead	Robert J Volk, and Hillary Llewellyn‑Thomas
Chapter A	Using a Systematic Development Process
Lead	Angela Coulter
Team Members	Jennifer Kryworuchko, Patricia Mullen, Chirk-Jenn Ng, Diana Stilwell, Trudy van der Weijden
Chapter B	Providing Information About Options
Lead	Deb Feldman-Stewart
Co-lead	Mary Ann O'Brien
Team Members	Marla Clayman, Joyce Davison, Masahito Jimbo, Michel Labrecque, Richard W Martin, Heather Shepherd
Chapter C	Presenting Probabilities
Co-leads	Lyndal Trevena, and Brian Zikmund‑Fisher
Team Members	Adrian Edwards, Wolfgang Gaissmaier, Mirta Galesic, Paul Han, John King, Margaret Lawson, Suzanne Linder, Isaac Lipkus, Elissa Ozanne, Ellen Peters, Danielle Timmermans, Steven Woloshin
Chapter D	Clarifying and Expressing Values
Co-leads	Michael Pignone, and Angie Fagerlin
Team Members	Purva Abhyankar, Nananda Col, Deb Feldman‑Stewart, Teresa Gavaruzzi, Jennifer Kryworuchko, Carrie A Levin, Arwen Pieterse, Valerie Reyna, Laura Scherer, Anne Stiggelbout, Celia Wills, Holly Witteman
Chapter E	Using Personal Stories
Lead	Hilary L Bekker
Co-lead	Anna Winterbottom
Team Members	Phyllis Butow, Amanda Dillard, Deb Feldman‑Stewart, Jack Fowler, Maria Jibaja‑Weiss, Victoria Shaffer, Robert J Volk
Chapter F	Guiding / Coaching in Deliberation and Communication
Lead	Dawn Stacey
Team Members	Jeff Belkora, Kate Clay, Joyce Davison, Marie‑Anne Durand, Karen B. Eden, Aubri Hoffman, Mirjam Koerner, Jennifer Kryworuchko, France Légaré, Marie‑Chantal Loiselle, Richard Street
Chapter G	Disclosing Conflicts of Interest
Lead	Michael J Barry
Co-lead	Clarence Braddock
Team Members	Evelyn Chan, Benjamin Moulton, Sunita Sah, Magenta Simmons
Chapter H	Delivering Decision Aids on the Internet
Lead	Aubri Hoffman
Co-lead	Robert J Volk
Team Members	Martin Härter, Linda Li, Hilary Llewellyn‑Thomas, Anton Saarimaki, Christine Stirling
Chapter I	Balancing The Presentation of Information and Options
Lead	Peep Stalmeier
Co-lead	Robert J Volk
Team Members	Purva Abhyankar, Jennifer Blumenthal‑Barby, Paulina Bravo, Angela Buchholz, Nananda Col, Elissa Ozanne, Dale Collins Vidal
Chapter J	Addressing Health Literacy
Co-leads	Kirsten McCaffery, Stacey Sheridan, and Don Nutbeam
Team Members	Marla Clayman, Karen Kelly‑Blake, Margaret Holmes‑Rovner, David Rovner, Sian Smith, Mike Wolf
Chapter K	Basing Information On Comprehensive, Critically Appraised, And Up-To-Date Syntheses Of The Scientific Evidence
Lead	Victor Montori
Co-lead	Annie Leblanc
Team Members	Angela Buchholz, Diana Stilwell, Apostolos Tsapas
Chapter L	Establishing the Effectiveness
Co-leads	Karen Sepucha, and Richard Thomson
Team Members	Cornelia M Borkhoff, Joanne Lally, Carrie A Levin, Daniel D Matlock, Chirk‑Jenn Ng, Mary Ropka, Dawn Stacey, Natalie Joseph Williams, Celia E Wills

The preparation of the ORIGINAL 2005 IPDAS Collaboration Background Document was carried out by 12 writing teams. Previous Steering Committee members.

Last modified: 2024-03-20.